Our Board of Directors
Founder & Executive Director
Ashley Clark
Ashley is the founder of the MRKH Canada (previously Canada’s MRKH Conference) and an MRKH advocate located in Kingston, ON, Canada. For three years, she was the sole organizer of Canada's Annual MRKH Conference, but in 2021, brought together a team of passionate individuals to help her continue and expand her mission. As an advocate, she has spoken to MRKH people and supporters at international MRKH conferences, students at Queen's University and La Salle Secondary School, and publicly at organized fundraisers for Canada’s MRKH Conference gaining media attention from local news stations and newspapers. She has also taken her advocacy to the digital world as an influencer on TikTok, sharing her story with over 38K followers. With a diploma in Journalism and Public Relations & Event Management, Ashley works as a Director of Sales & Marketing by day, but enjoys her side hustles of photography and freelance writing outside of work. When not working or advocating, Ashley loves to play music and spend time with her family.
Vice Chair
Sunni Anne Ball
Sunni Anne Ball is a prominent volunteer in the MRKH community, speaking and providing movement workshops at conferences throughout North America. She has been a fixture at the Boston Children’s Hospital conference for seven consecutive years, as well as the University of Michigan and now virtual conferences around the globe. Sunni has been involved with the conferences held by Canada's MRKH Conference, now MRKH Canada and is excited to come on board as Vice Chair. Sunni has two Bachelor of Science degrees in Health Promotion and Kinesiology from Dalhousie University. She owns an in home/virtual personal training business and resides north of Toronto. Sunni was diagnosed with MKRH when she was twenty, just after she had won the Wakeboarding World Cup Stop in Russia. Being newly diagnosed with MRKH and on tour as an elite athlete in an extreme sport was an interesting start to the long journey that was coming to grips with MRKH. At thirty-six she finds herself grateful, having moved through acceptance to full out celebration of this unique diagnosis. Writing an inspirational memoir, she is seeking agency and publication.
Treasurer
Lillian Tummonds
Lillian recently discovered MRKH Canada, 32 years after she was first diagnosed with MRKH. Ashley was the first person with MRKH Lillian spoke to since her diagnosis - and was instantly inspired to support MRKH Canada. Drawing on the strength of her diagnosis, Lillian is ready to share her story and is looking forward to being part of the MRKH Canada Board to support the efforts of the organization - having participated in the 5000 Meters for MRKH and spoken at the annual conference. When not participating in volunteering activities - Lillian is the SVP Retail Operations with Cadillac Fairview and has oversight of the Canadian portfolio of shopping centres. She has been in property management for over 29 years – with over 25 of those years at Cadillac Fairview – working in various roles, beginning in accounting, moving on to leasing and General Manager roles. In 2021 she moved into the VP Office Operations role overseeing Western Canada before moving into the national role in January 2024, relocating from her hometown of Vancouver to Toronto - where she currently resides with her husband Fred and her beloved golden retriever, Daisy.
Secretary
Sheila Lessard
Sheila is a Belleville girl and has lived in the area her entire life. Growing up in the 1970s, MRKH was an unheard-of syndrome and the symptoms weren’t talked about because such things were stigmatized by society in those days. With the advent of the Internet and search engines, she discovered she wasn’t alone and the myriad of symptoms she experienced had a name. She became self-educated on the topic of MRKH. It is now part of Sheila’s mission to connect people with MRKH to each other so they can support each other and have access to much needed resources. It’s also her hope to network with women in her own age group with MRKH. Sheila has worked in the CRM/technology support business for over 20 years, lately as a Case Manager. When not working she enjoys the gym, long walks, her pets, and hanging out with her husband and family.
Our Other Team Members
Treasurer Assistant
Sandra Clark
Sandra Clark was thrown into the MRKH world when her oldest daughter was diagnosed with it in 2012 at the age of 16. Since then, she has been passionate about supporting her daughter and other young girls with the syndrome. She has been volunteering at Canada’s MRKH Conference since it was first launched in 2018. Sandra works as an Estate Planning Associate for a Financial Planner and has been in the financial industry for over 25 years. She has volunteered as Treasurer for various sports teams within the Greater Kingston Softball Association and Kingston Ice Wolves over the past ten years. Outside of work and volunteering, family means everything to Sandra. A mother of two with a big Italian family, she enjoys cooking for her family and going camping throughout the warm summer months.
Social Media Content Creator
Shannon Backlund
Shannon is a full-time Outreach Support worker in Ottawa. She enjoys spending her free time with her husband and dogs, out in nature with friends or crafting!
"I was 10 years old when I was diagnosed with MRKH. Being diagnosed so young, I found, was both a good and bad thing. I was able to go into puberty and teenagehood already knowing that things wouldn’t be the same for me as it was for my girl-friends. However I also pushed a lot of thoughts and feelings to the back of my head at that time. It wasn’t for another 17 years that I found MRKH Canada and was able to truly start dealing with those thoughts and feelings. I am truly so thankful to have found MRKH Canada and am very excited to be a part of the team. I plan to bring more awareness to MRKH and hope to help others not feel alone!!"